#hypoparathyroid

34 posts

Hard to believe this was on Friday! Now back in a cloudy Glasgow, catching up on the washing and feeling pretty tired! #mumlife #kidsofinstagram #februaryhalfterm #beach #pettlevel #sussex #rye #chronicillness #hypoparathyroid
#Teto : what? They jumped off by themselves. I can’t help. #kitten #hypoparathyroid #catsofinstagram #domesticshorthair #gingercat
Ended the year on a healthy note! I didnt gain 1 freaking pound this holiday season. AND I ate all the food. Next year I'm busting ass to be healthier for my family. I'm not worried about the weight, itll come off. My focus is endurance, strength and POWER. The rest will come. I refuse to let my illness define me ANY longer! I refuse to be afraid to push this body I have. I only have the 1! #Hypoparathyroid #Hypocalcemia #Natpara #Hypothyroid #RareDisease #36AndHealthier #NewYearNewShelly #holidayproof #otflvc #otflvcfam #Orangetheory
Had one of those days today which I was seriously worried was going to end up with a hospital admission. After months of my calcium level dragging along at the bottom of the normal range, it's suddenly jumped up to the top of the normal range. My Gp and I both panicked and thought it had maybe gone too high and that my kidneys would be complaining but she sent me down to the hospital for another blood test and I found out this afternoon that it has stayed stable and my kidneys are ok. Phew! So I have to reduce all my calcium medication and get checked again in a few weeks. And more good news, my thyroxine dose was increased 6 weeks ago because my thyroid stimulating hormone was too high and my TSH has now dropped back down to 2.5 which is a great relief! If it hadn't, my endocrinologist would have started to investigate to see if I had a benign growth on my pituitary gland!! Chronic illness, eh! The fun never ends. #phew #grateful #thankful #hypoparathyroidism #cancercrew #cancermama #cancerconvalescent #hypoparathyroid #calciumlevel #thyroidcancer #thycawarrior
Nota 2 Umi : TANDA-TANDA DAN SIMTOM-SIMTOM PARATHYROID 1.Perasaan yang lemah, keletihan yang teramat, kekurangan tenaga  2.Mengalami Osteoporosis dan Osteopenia 3.Mengalami perasaan tekanan sepanjang waktu 4. Batu di ginjal 5. Arrhythmias (Degupan jantung yang laju) 6. Keguguran rambut 7. Gastrik dan sakit kepala 8. Sakit sendi dan Tulang 9. Kemurungan 10. Jangka hayat akan memendek sebanyak 5 tahun bagi pesakit yang mengalami Parathyroid selama 15 tahun yang berterusan PERUBATAN BAGI SAKIT PARATHYROID 1.Sensipar (Cinacalcet) Tetapi ubat ini mempunyai kesan buruk kerana ia memburukkan lagi penyakit Osteoporsis 2.Pemakanan seimbang yang mengandungi vitamin D dan kalsium. #hypoparathyroid
Oh yeah! Got myself some Sandocal today thanks to my favourite pharmacy assistant! No sucking chalk for me this evening. It's the simple things in life, eh? #cancermama #cancerconvalescent #cancercrew #hypopara #hypoparathyroid #lowcalcium #sandocal #calcium #calciumsupplement
I cried for 2 years straight. I cried myself to sleep for 2 years. And God never decided to abandon me because I was “being a baby “ or “holding on” to the old me. Instead..He held me tighter. He sang over me. He wiped my tears. He cried. He prayed for me. How do I know?! Because I am here today. I am here today full of hope. And learning joy along the broken road❤️ #lookup #lookupchild #morethanaconqueror #warriorprincess #godinme #lethimdohisthing #iamhischild #joyunspeakable #hurting #healing #chronicillness #raredisease #hypoparathyroidism #hypopara #hypoparathyroid #autoimmunedisease #fighter #survivor #onwardandupward #bigthingscoming
Update 19/10/18 Baru-baru ini kami bawa Khadeejah ke Hospital Kuala Lumpur bertemu Dr Ngu. 15/10/18. Pasrah... serah sahaja kepada Allah apa pun keputusan ujian darah untuk mitochondrial disoder. Alhamdulillah.. menurut doktor ujian menunjukkan Khadeejah tidak mengalami gangguan mitochondrial pada selnya.Itu melegakan kami. Saya nyatakan juga tentang osteoporosis yang dialami Khadeejah. Melalui ujian darah yang para doktor di PPUKM minta kami buat di Gribble Lab baru-baru ini, ujian 25-hydroxy vitamin D Khadeejah menunjukkan ianya rendah. 35.0 nmol/L berbanding (60.0 - 160.0) nmol/L paras normal. Ujian ini umi minta Klinik Siti Zariah, panel doktor Institusi Hira uruskan dengan Gribble Lab. Walau bagaimanapun, Dr Ngu di HKL berpendapat ianya bukanlah penunjuk aras kepada kerapuhan tulang atau osteoporosis. Dr Ngu mencadangkan supaya Khadeejah melalui satu lagi ujian yang lebih spesifik untuk tentukan keadaan tulangnya. Saya perlu studi tentang perkara ini. Umi lupa sebenarnya nama ujian tersebut... Tak cakna sebenarnya kerana mula terasa lelah dengan penyakit ini .Perkara ini perlu kami ambil perhatian dan tindakan memandangkan kesan suntikan aclasta ini nampaknya mengganggu rutin harian Khadeejah. Jika benar bukan osteoporosis, tidak perlulah Khadeejah mengambilnya tahun hadapan. Ini bagusnya sekiranya kami mempunyai pendapat kedua doktor selain daripada doktor sedia ada. Ada sesetengah pendapat mengatakan tak perlu second opinion.. nanti pening.. Saya kira second opinion sangat membantu kami dalam membuat keputusan apakah rawatan terbaik untuk Khadeejah. Adalah sangat penting untuk memfailkan kesemua surat-surat doktor yang kami ada.1 fail yang mempunyai banyak plastik lutsinar yang memisahkan antara 1 dokumen dengan dokumen yang lain. Umi rasakan setiap kali bertemu doktor seolahnya ingin menghadiri temuduga kerja lagaknya.. Setiap satunya umi buatkan beberapa salinan untuk sebarang urusan yang berkaitan dengan Khadeejah. Pernah juga umi ter'panic'.. nurse yang bantu umi selak setiap helaian untuk dapatkan dokumen yang diperlukan. Selepas daripada itu, perbincangan umi dengan Dr Ngu berkisar kepada #hypoparathyroid dan #Fahr 's Disease pula.
God Bless, it's another hot one! To think, just a couple 年前發佈 I'd have to take cover because the heat would exhaust my poor body so much. Today, I'm loving it. I've got more energy than I did at 22! I'm exercising, I'm able to eat without my belly screaming at me, I'm not #swollen and #bloated , I feel healthy and I look healthy. Praise the Lord for #Plexus and that #gutglam What you're going through on the inside reflects to the outside. I'm looking #fourtytwo right in the face and saying #bringiton . A healthy #microbiome #changeseverything and Plexus was my #gamechanger . I can #cheat , eat #gluten and #dairy along with #fats and not feel awful. Eating shouldn't be painful, neither should getting older. Cancer and holding? Sure, why not. Autoimmune dysfunction? Could have fooled me? My diagnoses don't define me. Neither should yours! Let's get #fabulous together! #livingwithcancer #thyroidcancer #endometriosis #autoimmunedisease #psoriasis #ProBio5 #BioCleanse #SlimHC #Joyome #XFactor #fitover40 #grateful #hypoparathyroid #hypothyroidism #chronicpain #chronicbackpain
If your gym doesn't have one of these, find one that does! In our society, you can't pass up the reverse hyper extension machine. Especially if you have low back issues. Don't be intimidated by its rough exterior, this machine is here to help. My gym, they're doing it right! Combat low back dysfunction and pain, the right way. #trainyourlowerback , it will thank you for it. #thepowerstation #liftforhealth #functionalfitness #bodybyplexus #plexus #biotest #girlswholiftheavy #liftheavy #fitover40 #aginginreverse #taketimeforyou #microbiome #chronicpain #endo #endometriosis #cancersurvivor #thyroidcancer #hypoparathyroid #nothyroidnoproblem #autoimmunedisease #psoriaticarthritis #psoriasis #arthritis #degenerativediscdisease #DJD #DDD #spinalstenosis #mydiagnosisdoesntdefineme #powerlifting
#Hypoparathyroid #Hypopara Awareness Day. Learn more about this rare #hormone condition on our website http://ow.ly/ywIb30kiiMj
🦋Tomorrow, June 1st is Hypoparathyroidism Awareness Day! “Hypoparathyroidism is the state of decreased secretion or activity of parathyroid hormone (PTH). This leads to decreased blood levels of calcium (hypocalcemia) and increased levels of blood phosphorus (hyperphosphatemia).” DOUBLE TAP IF YOU OR SOMEONE YOU KNOW IS AFFECTED BY Hypoparathyroidism🦋 #hypoparathyroidism #thyroidproblems #parathyroid #thyroidcancer #thyroidectomy #thyroid #thyroiddiseaseawareness #hpth #hypopara #hypocalcemia #hypoparaday2018 #hypoparathyroid #lowcalcium #june1 #june12018 #trending #june #calcium #calciumforlife #awareness #awarenessmonth #awarenessday #friday #ujbonmain #thyroidsurgery #parathyroidsurgery #parathyroiddisease #parathyroidectomy
When I found out my thyroid surgery didn’t go as planned 3 年前發佈 I was devastated. All the complications, dr visits, and high doses of medications had me thinking I just had to deal because it would never get better. Then I started supporting my body instead of fighting against it. I feel better which is the most important part but my body is also doing what it’s supposed to do! #thyroidproblems #mythyroidleftandtookhisparathyroidfriendstoo #hypothyroid #hypoparathyroid #youngliving #yleo #endoflex #mister #masterformula #supercal #sorrynotsorryifeelgreat #taketheroadlesstravelled
Update 29/1/18 Hari ini saya bawa Khadeejah ke PPUKM untuk berjumpa dengan neurologist. Kali ini siasatan para doktor lebih menjurus kepada "Hypoparathyroid". Saya mula berkenalan dengan Prof Datin Dr Norlinah dan Prof Dr Tan Hui Jan di unit neuro. Symptom sawan Khadeejah mula kelihatan. Doktor sarankan dia mengambil keppra pula. Saya mula ketepikan topiramite apabila kesan sampingan sebelum ini menyebabkan berat badannya turun mendadak. Usai bertemu neurologist, Khadeejah dibawa bertemu endocrinologist - Prof Dr Norasyikin yang memanjangkan kes Khadeejah ke Prof Dr Nor Azmi. Doktor mula menjalankan siasatan berkaitan hormon parathyroid. Secara ringkasnya, keadaan sawan Khadeejah berpunca daripada kalsium yang berkumpul di bahagian otaknya. Mengapa kalsium berkumpul di tempat yang tidak sepatutnya? Menurut doktor, ia disebabkan oleh keadaan hypoparathyroid itu tadi. Dan hari ini kami menerima beberapa tugasan yang perlu dilakukan penghujung april ini. Khadeejah akan melalui ujian urin selama 24 jam. Doktor akan memantau kesihatan buah pinggangnya. Dia juga akan menjalani ultrasound. Ujian darah juga akan dilakukan lebih banyak berbanding biasa. Khadeejah juga perlu saya bawa ke klinik mata untuk memastikan tiada kataraks di matanya. Sesuatu yang agak merisaukan juga kerana Khadeejah kerap mengadu penglihatan semakin terjejas. Nampaknya hypoparathyroid ini berisiko untuk menjejaskn organ dalam badan juga seperti mata, otak, buah pinggang, jantung. Rasanya cukuplah dahulu buat sementara waktu ini. Keadaan ini membuatkan umi kelelahan.. Khadeejah mula bertanya.. Adik boleh sembuh ke umi? Nadanya seperti mula menaruh harapan.. Segala pujian bagi Allah Yang Maha Diperlukan.. #hypoparathyroid #neuroppukm
Going on a probiotic binge to try and sort out my calcium level which has been low for over a year. I saw my endocrinologist last week and suggested to her that I start taking these. She was happy for me to give it a go and her parting comment was "the good thing about you is that you always have a suggestion about what we can do, I can just suggest increasing your drugs. And if this works, I'll get to take the credit!" At least she's honest! I really hope these help. They are prescribed for people with crohns and ulcerative colitis so they are pretty powerful! #vsl #3 #probiotics #guthealth #guthealing #tryingtogetbetter #hypoparathyroid #hypopara #thyca #thycawarrior #lowcalcium
Since its world hypoparathyroidism day here's some symptoms of hypocalcemia (low blood Calcium - the main risk of hypoparathyroidism) #worldhypoparaday #hypocalcemia #hypopara #hypoparauk #parathyroid #totalthyroidectomy #hypocalcemia #lowcalcium #hypoparathyroidism #hypoparathyroid #symptoms #butterfly #thyca #thyroidproblems #tetany #chvosteksign #trousseaussign
I was asked what my daily prescribed meds looks like. These are just the pharmacy dispensed one's. That's 26 pills, plus I have to take B12 injections, massive doses of calcium, magnesium, and potassium. Those last three don't all fit in this box so they're separate from it. #thycawarrior #thyca #fuckcancer #hypoparathyroid
My story: I'm Alyssa and I'm 24. I have been #hypothyroid since age 12. I've suffered from #bipolardisorder forever I think, but was diagnosed #depressivebipolar at 14. At 19 I got #thyroidcancer , a total thyroidectomy, radiation, and a promise that it would be easier now. Anyone whose been through that knows how untrue it is. I developed #epilepsy . Had my first seizure a month after radiation. Three types of seizures. I got married. Got #abused , physically for 8 months then was #raped and finally left. I checked myself into a psych ward about 4 months later when I couldn't handle it anymore. I knew if I didn't I would kill myself. I was diagnosed #PTSD . It's been a year and a half and I struggle with it daily. I've been diagnosed with #fibromyalgia , I am #hypoparathyroid , I have #endometriosis and a few other minor medical conditions. This year, 4 years after my first fight with cancer I found out I had it again. Same game, different day. Have been in remission for about 2 months now. The greatest thing in the world happened to me though, I met a man and his two perfect daughters. And by perfect I mean I usually want to hang them by their toes but I would do anything in this world to ensure they lead happy lives and grow up knowing the world is theirs for the taking. This happy union has also included a bio mom who clearly has mental issues and needs help but won't get it. We have full custody of our girls but she is always there, trying to make everyone else's lives as toxic as her own. Even with her drama being a #stepmom to them is such a blessing. Before I got cancer I was in college on an academic and cheerleading scholarship. I was strong and smart and confident and knew I could do anything I wanted. A lot has changed since then but I've come to learn that this path I walk is not one I walk alone, and that it has led me where I need to be. I am a #warrior with a huge heart and quick mind. I fight the good fight everyday, I fight to have the life I want and deserve, I fight to not let my health take anymore away from me than it already has, I fight to stay alive. Because I'm no where near done with my story.
So grateful to be feeling like my old self--went for a rigorous hike yesterday (made great time and saw zero snakes)--went to Orange Theory this morning and truly feel like I'm FINALLY making a comeback. I'm 6 mos post TT and radical neck dissection (follicular carcinoma), countless medication adjustments, 10lb weight gain (and now at a 4lb loss). I recognize there is still a road ahead, but am pleased that the road is starting to level out! Enjoy your weekend all! #thyca #thyroidcancersurvivor #thyroidcancerawareness #thyroidcancer #thyroid #hypothyroidism #hyperthyroidism #hypoparathyroid #cancer #cancerawareness #cancersucks #grateful
Considering how accident prone I was last year this is quite an appropriate #newyearresolution #newyear #injury #brokenhip #hypoparathyroid #dontdie
Been a long week, ready to feel better. Calcium level dropped way too low this week after getting a stomach bug, ready to get back to the gym! #thyca #hypoparathyroid #hypocalcemia
Two things I always have with me when I head out for a workout. #hypoparathyroid #Cal -EZ #Rare Diseases #Running #triathlon
Hard swim workout today but finished with a smile! #teamkattouf #hypoparathyroid #triathlon
Feeling this today! My body doesn't produce calcium on its own due to a thyroid surgery complication so I woke up with some crazy Charlie horses! 😳😳 Still glad I worked out though! 😊 Planning on chugging so much 💦💦💦 today for #TIUTuesday !! #summersizzle #tiuteam #thyca #hypoparathyroid #hydrate @toneitup
just me and my boo. you know. just doing some late night suffering. This person's face reflects the #agony I feel reading this #medsurg #textbook . God damn I #hatestudying . #rescueme the irony is I'm wearing a self-rescuing princess shirt. But #plx #rescueme #fromthishell